Nicky Whiffin in Alternative Honours List

Nicky Whiffin was named in The Sunday Times Alternative Honours List of 2025, for her role in helping to discover the genetic basis of ReNU syndrome - a previously unexplained neurodevelopmental disorder. 

Nicky's response is here.

This article by the Lister Institute is a good introduction to the context and importance of this work.

This story by James Coney (father of Charlie, who has ReNU syndrome) discusses the impact that formal diagnosis had on their family.