Screenshot of policy paper on gov.uk website

MRC CoRE part of England Rare Diseases Action Plan 2026

Published March 4, 2026 | News - CoRE

The MRC CoRE TG was namechecked as part England's national strategy for rare diseases in 2026, alongside our collaborators at the Oxford Harrington Rare Disease Centre. We are proud to be contributing to progress against the UK Rare Diseases Framework.

The 4 priorities of the framework are:

helping patients get a final diagnosis faster
increased awareness of rare diseases among healthcare professionals
better co-ordination of care
improved access to specialist care, treatment and drugs